{"id":435082,"date":"2026-03-01T22:27:11","date_gmt":"2026-03-01T21:27:11","guid":{"rendered":"https:\/\/www.ma-grande-taille.com\/?p=435082"},"modified":"2026-03-01T22:12:54","modified_gmt":"2026-03-01T21:12:54","slug":"maladie-enfants-de-la-lune-parcours-femme-determinee","status":"publish","type":"post","link":"https:\/\/www.ma-grande-taille.com\/cs\/psycho\/bodypositive\/nemoc-deti-mesice-odhodlana-cesta-zeny-435082","title":{"rendered":"Nemoc \u201em\u011bs\u00ed\u010dn\u00edch d\u011bt\u00ed\u201c: cesta odhodlan\u00e9 \u017eeny"},"content":{"rendered":"

Zat\u00edmco n\u011bkte\u0159\u00ed se mohou jednodu\u0161e nat\u0159\u00edt opalovac\u00edm kr\u00e9mem, aby se chr\u00e1nili p\u0159ed UV z\u00e1\u0159en\u00edm, Nihal si mus\u00ed zabarik\u00e1dovat k\u016f\u017ei pod siln\u00fdmi l\u00e1tkami a uzav\u0159\u00edt se do ochrann\u00e9 bubliny. S skafandrem p\u0159ipevn\u011bn\u00fdm k hlav\u011b a zakr\u00fdvaj\u00edc\u00edm cel\u00e9 t\u011blo se na ka\u017edou m\u011bstskou exkurzi obl\u00e9k\u00e1 jako astronautka. Trp\u00ed toti\u017e \u201em\u011bs\u00ed\u010dn\u00ed nemoc\u00ed\u201c, ale tento stav j\u00ed nebr\u00e1n\u00ed v tom, aby snila ve velk\u00e9m a m\u00ed\u0159ila v\u00fd\u0161 ne\u017e ke hv\u011bzd\u00e1m.<\/p>\n

Skafandry, jeho ka\u017edodenn\u00ed \u017eivot<\/h2>\n

\u0158\u00edk\u00e1 se, \u017ee \u017eeny poch\u00e1zej\u00ed z Venu\u0161e, ale Nihal je \u201ed\u00edt\u011b M\u011bs\u00edce\u201c. Je odsouzena k \u017eivotu, jako by byla na ob\u011b\u017en\u00e9 dr\u00e1ze na pevn\u00e9 zemi, od\u011bn\u00e1 v obleku, kter\u00fd vytv\u00e1\u0159\u00ed iluzi bezprost\u0159edn\u00edho startu nebo vesm\u00edrn\u00e9 mise. Vybavena brn\u011bn\u00edm s UV ochranou vypad\u00e1 jako hrdinka sci-fi. Kv\u016fli tomuto ko\u017en\u00edmu onemocn\u011bn\u00ed se mus\u00ed chr\u00e1nit p\u0159ed sluncem, sv\u00fdm nejhor\u0161\u00edm nep\u0159\u00edtelem.<\/p>\n

Jakmile v\u0161ak padne noc, m\u016f\u017ee tuto l\u00e1tkovou kuklu odlo\u017eit a proch\u00e1zet se ve sv\u011btle no\u010dn\u00ed oblohy. V\u00edme, \u017ee slunce, a\u0165 je sebev\u00edc p\u0159\u00edjemn\u00e9, je hrozbou, kter\u00e1 se na obloze ty\u010d\u00ed. Nav\u00edc, i kdy\u017e barv\u00ed ple\u0165, zanech\u00e1v\u00e1 na t\u011ble tak\u00e9 fat\u00e1ln\u00ed stopy. P\u0159edpokl\u00e1d\u00e1 se, \u017ee t\u00e9m\u011b\u0159 80 % ko\u017en\u00edch melanom\u016f je zp\u016fsobeno vystaven\u00edm slunci. Pro tuto mladou \u017eenu, kter\u00e1 vrh\u00e1 sv\u011btlo na toto skryt\u00e9 onemocn\u011bn\u00ed, m\u016f\u017ee i sebemen\u0161\u00ed vystaven\u00ed slunci v\u00e9st k rakovinn\u00fdm l\u00e9z\u00edm.<\/p>\n

Jej\u00ed obli\u010dej je pokryt\u00fd pihami<\/a> , co\u017e je d\u011bdictv\u00ed z doby p\u0159ed diagn\u00f3zou. Kdy\u017e j\u00ed l\u00e9ka\u0159sk\u00e1 komunita diagnostikovala xeroderma pigmentosum, co\u017e je v\u011bdeck\u00fd n\u00e1zev pro toto onemocn\u011bn\u00ed, kter\u00e9 postihuje m\u00e9n\u011b ne\u017e sto mlad\u00fdch Francouz\u016f, jej\u00ed rodi\u010de ud\u011blali v\u0161e pro to, aby se na vlastn\u00ed planet\u011b nec\u00edtila jako cizinec. Jak ukazuje na sv\u00fdch soci\u00e1ln\u00edch s\u00edt\u00edch, kter\u00e9 j\u00ed slou\u017e\u00ed jako jak\u00fdsi osobn\u00ed den\u00edk, tento stav \u201ed\u011bt\u00ed M\u011bs\u00edce\u201c nikdy nezast\u00ednil jej\u00ed sny a chu\u0165 do \u017eivota. <\/p>\n

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P\u0159\u00edsp\u011bvek sd\u00edlen\u00fd u\u017eivatelem Nihal MDJ | D\u00edt\u011b M\u011bs\u00edce \ud83d\udc69\u200d\ud83d\ude80\ud83c\udf19 (@nihal.mdj)<\/a> <\/p>\n<\/div>\n<\/blockquote>\n